Who Is Isabel Bueso From 'My Last Days'? She's Raising Awareness For A Rare Disease
Justin Baldoni may be best known as one of the stars of Jane the Virgin, but his passion project, My Last Days, couldn't be more different. The docu-series, which airs from August 17 to August 19 on the CW, focuses on normal people who have been given terminal diagnoses. Dealing with symptoms, treatments, and the knowledge of the worst-case-scenario prognosis is pretty heavy stuff; it takes a special kind of person to not only process all that, but to allow it to be filmed and broadcast on television. So, who is My Last Days subject Isabel Bueso, who will be featured in the episode airing on August 18?
The Concord, California, resident and aspiring sociologist has an illness you've probably never heard of: Mucopolysaccharidosis VI (MPS VI for short). She's been working for a while to raise awareness of the condition, which might explain why she'd be so willing to share her story on My Last Days. Hopefully, it'll shed some light on what MPS VI is, and how (or if) it can be treated. Before you get to meet her for real on her episode, here are some things to know about Isabel Bueso.
1. She Has Mucopolysaccharidosis VI
According to California State University East Bay, which did a profile on Bueso, MPS VI is "a family of diseases caused by enzyme deficiencies. Only a few thousand people in the world suffer from the genetic disease, which often can stunt growth and lead to numerous side effects, including blindness and added pressure in the skull or spinal column."
2. She's Already Beaten The Odds
In a press release, the CW reports that Bueso was raised knowing she wouldn't live past the age of 20. Now, she's 21.
3. She's Originally from Guatemala
Bueso and her family moved from Guatemala to California so she could continue to seek treatments for MPS VI — so she's had to deal with her disease and a cross-hemisphere move.
4. She's A Pioneer
According to the San Francisco Chronicle, Bueso was one of the first to receive an experiment gene therapy treatment for her condition. "The initial treatments went so well that the enzyme therapy won U.S. approval in 2005, and now researchers are testing it in babies," the paper reports. Bueso paved the way.
5. That's Not The Only Way She's Giving Back
She's also dedicated her life to helping the Make a Wish Foundation. If you want to support her, visit Bueso's Go Fund Me page.
There can be no doubt that Bueso's episode will raise a lot of awareness, and help her in that fight. The fact that she can be this inspirational before her episode has even aired is really, really cool.
Images: The CW (4)