Health

8 Resources For Endometriosis Support & Information

For those who have endometriosis, suspect they may have it, or know someone who does and want to help.

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Endometriosis affects one in ten women in the UK (according to Endometriosis UK), It’s a real problem that deserves more attention. March is endometriosis awareness month, but those with the condition require support and attention year-round. It can feel tough to know where to look, and overwhelming if you’ve been newly-diagnosed with the condition, or suspect you may have it. These eight endometriosis resources for support and information are great places to begin.

Endometriosis is a condition where tissue similar to the lining of the womb begins to grow elsewhere in the body, commonly in the pelvic area . Its main symptoms are pelvic pain and pain when going to the loo particularly during or around your period, pain during penetrative sex, fatigue, and heavy menstrual bleeding. The illness can also mean getting pregnant is more difficult for some. Although, an endometriosis diagnosis doesn’t necessarily mean you will struggle to conceive.

Whether you have endometriosis yourself, suspect you may have it, or know someone who does and wish to support them, there are a great deal of resources out there. In fact, the range can feel quite overwhelming, which is why narrowing it down to know where to start is helpful. With this in mind, I’ve found eight useful sources of information to help you get to grips with the condition.

Endometriosis UK

The leading charity for Endometriosis in the UK, the organisation’s mission is to improve the lives of those with the condition, and to support them in the best way possible. Their website is a great starting place for supportive resources, including an online community, and links to support groups and helplines.

Visit endometriosis-uk.org for more information.

The NHS

As with many health conditions, the NHS is a good solid place to start in terms of research and support. Their endometriosis page has everything laid out super simply for those who are newly-diagnosed, or suspicious they may have the illness, from symptoms to treatments. They also have a section which links out to supportive groups in the UK.

Visit nhs.co.uk for more information.

The Endometriosis Clinic

The London clinic focuses on scientific, hi-tech robotic surgery services, but it’s their website that’s the most incredibly useful tool. It has everything, from full explainers on what endometriosis actually is, to videos, support groups, and other outside useful links to read through.

Visit endometriosisclinic.co.uk for more information.

Endometriosis.org

This is the place to go for the most recent news about all things endometriosis, from fundraising events to the latest scientific advancements. It’s much more newsy-based than some of the other supportive resources, but if you want the facts without any fluff, definitely check it out.

Visit endometriosis.org for more information.

Bupa

Bupa’s endometriosis page is a useful resource, with everything from facts and figures to personal stories and articles. It’s easy to feel overwhelmed by your condition, but this is a great one-stop shop for all the information and opinions you may need. There are also places to go for support here.

Visit bupa.co.uk for more information.

World Endometriosis Research Foundation

The World Endometriosis Research Foundation (or WERF for short) aims to supports specific research projects that focus on finding treatments for endometriosis. On their website, you can read their past clinical studies, as well as find ways to support the organisation through fundraising efforts.

Visit endometriosisfoundation.org for more information.

Endometriosis Research Center

The ERC is based in the U.S., but their website provides some good solid information, as well as details about international research and developmental studies that are taking place across the globe. You can join their mailing list for updates if you like, too.

Visit endocenter.org for more information.

Pain Concern UK

As its name suggests, this organisation aims to help all those who suffer from pain across the country, regardless of why. It provides both information and resources, as well as community support and help via phone lines you can get in touch with. If you suffer with pain from endometriosis, this is a reliable resource and place to visit.

Visit painconcern.org.uk for more information.